Skip to main content

My 2/3 Diaversary

Today is my #diaversary ; an interesting one. Today, at age 33 I have lived precisely 2/3 of my life with type 1 diabetes onboard. 

I used to think the worst part of life with type 1 diabetes was all the needles and finger pricks and judgment. But now, 22 years later I realize the worst part is actually time. Diabetes has stolen so.much.time. 

Initially, it was time away from friends and social activities. Time to prepare injections, time to execute finger sticks (a full 45 seconds in those days!), time to recover from low blood sugars. 

But now, diabetes steals time even beyond the mechanics of the disease itself. Time to troubleshoot malfunctions and sit on hold with diabetes technology companies. Time to compare insurance plans in detail, down to the preferred networks and formularies. Time to attend endocrinology and ophthalmology appointments. Time for the bloodwork and the associated waiting rooms. Time for lots of extra prenatal appointments and non-stress tests. Time for extra healing even on the smallest cuts or the most benign cold. Time to respond to the high or low threshold vibrations. Time to pre-count and pre-bolus. Time to plan for a simple half-hour run. Time to place sensors and pump sites. Time to inventory supplies and sit in the pharmacy drive-thru. 

But this isn't just a post complaining about my time-consuming chronic illness, it's a reminder that in spite of all the bad there is indeed some good. Through the lens of time (of all things) I've learned that diabetes forces efficiency and builds in the valleys that make the peaks of life feel so prominent. It has perfected my multi-tasking skills and continues to grace me with new friends that share it's challenges. It has made me courageous beyond my baseline and instilled empathy in the most raw way. It has taught me lessons I didn't know I needed to learn and has given me an outlet to practice patience, daily. 

And so, I'm reminded...



I'm reminded to meet my life with type 1 diabetes head-on (and lick it?). The fraction of my life pre-diabetes will keep decreasing, but that's a good thing, because it means I am still LIVING in spite of this diagnosis. 

Thanks for letting me spill my guts on this ...date...forever etched in my memory. 


Comments

  1. I love the cool picture of the syringe on blast off. But what I have to say is that damn it you are catching up to me. I had my 46th diaversary in June and i was thrilled to be 25 years ahead. now, I am only 24 years ahead.

    Now I will have to get to June again to clock myself back to 25 years ahead. Talk about putting pressure on a guy. :)

    Happy New Year form Indiana

    Rick Phillips

    ReplyDelete
  2. Thank you for sharing the good and the bad along the way. You, and all the young people that have this disease from childhood, are an incredible inspiration. Even at the old age or 72, T1D for 2 years,I learn from you and your peers every day. Yes, T1D sucks, but I'm richer for having connected with you and so many others fighting the good fight. You are amazing!
    Happy New Year!

    Margie B

    ReplyDelete

Post a Comment

Who has two thumbs and loves comments? Nerdy April!!! Type one out and hit publish!

Popular posts from this blog

The road to curing Type 1 Diabetes

From the moment of diagnosis, the road is rough, the learning curve is steep and the stakes are literally life or death. The map is less-than-helpful - paths originating from virtually every corner, coalescing at a center point (aka "diagnosis") and bursting back outwards - some paths cross and wrap around each other but others are isolated. And even with all of these roads, most of the territory is uncharted - how did we all get here and how will we all exit? Where are the obstacles we haven't found yet? Which passage holds the key to unlocking the solution? On any given day I feel pretty isolated with this disease - I'm the only T1D in my group at work, the only one in mission control, the only one in my family. I go through the logistics of calling insurance companies, ordering supplies, changing sites and troubleshooting malfunctions mostly on my own. Even those pesky carbs really only get counted in my brain, no group think for a meal bolus here. But there i

The Diabetes Transportation System DTS-T1

I was looking forward to the Space Shuttle launch on Monday, then it was pushed to Wednesday and now it is scheduled for Thursday due to several electrical issues from a main engine computer controller. Ironically, our little MH-47G (due to start testing on Monday originally) has been having it's own issues and it is still unclear exactly when we will start testing. And all of this uncertainty, schedule changes, and issue-working reminds me of my little friend Diabetes [come on, you knew that was coming :-)]. Even with hard work, super awesome bolusing skills [ check out Holly's blog today, the number crunching is very impressive] and constant blood sugar checks, Diabetes can still be unpredictable, necessitate schedule changes, and cause the carrier to work through the issues. I have been lucky today, even after a late-night cocktail last night, I woke up this morning at 112, and before lunch I was an amazing 113. I love being steady like that, cruising along with hardly an

What it's really like being a woman engineer in 2020

Today is International Women in Engineering Day (#INWED)! This year marks a full decade since earning an Aerospace Engineering degree, launching my journey as a woman engineer. So, what does it feel like as a woman engineer today, in 2020?  It probably comes as no surprise that women are still the minority in most engineering fields, mine included. The real statistics? At my first job out of college , women made up 10% of my group and that percentage came from only one woman: me. There were a handful of other women scattered throughout the rest of the organization but it was probably around 10% at best. I relied solely on men to teach me how to interact with military officers, when to speak up in meetings, how to don and doff flight gear and talk on the radio, how to avoid red-out during aerobatics, how to take engineering notes during night flights, how to setup and run data, how to run a pre-flight and post-flight briefing, how to conduct myself at customer sites, how to layer up an
01 09 10