Skip to main content

#happydiabeticchallenge - Diagnosis

Well this is a little embarrassing - I'm coming up on 10 years of blogging about my adventures with Type 1 Diabetes and all things space but haven't ever formally shared my diagnosis story. Sheesh.

Continuing with Leah's (@the.insulin.type) MAY you be a #happydiabeticchallenge today - day 2 is all about #throwback to diagnosis.

Stop rolling your eyes, of course I was an astronaut for Halloween (for like 6 Halloweens - pretty much every year this jumpsuit fit). 

Honestly, there isn't anything particularly unique about my diagnosis story, but maybe that's precisely why I should share it. The more people who know the signs and symptoms, the better.

What we all thought was just your standard run-of-the-mill December cold morphed into some odd symptoms. I was 11 years old and my grandparents were in town just like every Christmas. Normally we would stay up late playing cards and eating chocolates, but not this year. All I wanted to do was go to bed and then, once I was there I had to get up to pee 8-10 times. I was incessantly thirsty and just plain miserable.

My mom (bless her heart), thought I may be suffering from a urinary tract infection and like the good 'ol-wive' she is offered cranberry juice as a homeopathic remedy. Unbeknownst to her, this was the opposite of what my body needed. We started going to the pediatrician - and I say "started" because it felt like 5 days of going to the pediatrician, peeing in a cup and getting a blood test before they finally diagnosed me with Type 1 Diabetes.

I didn't need cranberry juice - I needed insulin.

To say the diagnosis was 'out of the blue' would be an understatement. I had never heard of Type 1 Diabetes and my parents seemed clouded by a fog of fear. We had no idea what the disease would entail, how our lives would change or what caused it to hit that Christmas break. And even now, 20 years later, I still don't have concrete answers to those questions. I am very much a work-in-progress-diabetic.

And her? That girl up there in the astronaut costume blissfully unaware of a rogue gene mutation that will change her life in just a couple months? I wouldn't change her a bit, or warn her it's coming, or burden her with even a single thought of diabetes. There will be a lifetime for all that later.

PS - I would love for you to hop on Instagram and give @nerdyapril a "follow"!

Comments

  1. Everybody knows that the cranberry juice is no good against diabetes. We all know that takes the ink form three jelly fish, the rust of 14 nails, grass clippings,maple tree bark and cumin (lots and lots of cumin).

    My mom was T1 so we knew almost instantly what the issue was and what had to be done. We also knew we were at Disney world and my mom and dad had saved for the trip. So we decided to stay. Mom being my mom decided that a few days would not matter much and lots of pancakes, ice cream and a few times to throw up was a good way to manage diabetes for two weeks.

    As she said, hey you wont die and lets face it you may never come to FL again. LOL. I laugh about the cranberry juice or the stay tow weeks in FL based on how we do things today. But as my mom used to say, hey a few weeks wont matter and you probably wont die. :)

    ReplyDelete
  2. Wow, wow, wow!!! This is an amazing story! Sometimes we look back on the past and say "thank goodness we didn't die because we didn't use seatbelts" but this, THIS, is something else! So glad you made it through that Disney vacation!!

    ReplyDelete

Post a Comment

Who has two thumbs and loves comments? Nerdy April!!! Type one out and hit publish!

Popular posts from this blog

Critical Space Item: Handle With Extreme Care

Someday I want to open a box. The box will be neatly wrapped up with an excessive amount of packaging. Its contents will have been years in the making, and even though it won't weigh much, this small box will represent a huge step forward.


As most flight hardware begins, the space-rated closed-loop insulin delivery and monitoring device inside the box will be sterile and stark. But as the batteries whir to life and insulin is placed within, it will become an extra appendage, an external pancreas, for this Type 1 astro-hopeful. Bluetooth connections will be made and doctors, hungry for telemetry from my bionic body, will be at the ready. We will rely on each other - he on I for his very existence, and I on him for my continued existence. Together we will make up one whole, completely functioning, Type 1 Diabetic astronaut.

Admittedly, this dream feels further and further from reality. I have lived with this disease just under 20 years now, and the cure has always been "just 5 …

MCM - Certified Mom

This morning I woke up early, the baby monitor was chirping just a few minutes before my alarm was set to go off. Chris graciously rolled out of bed and set out to re-insert Otto's paci. Meanwhile, I pressed my clothes, curled my hair and brewed some coffee - my standard pre-console routine. After a quick breakfast Zara peeped her head over the railing and I heard a gentle "mama" echo down the stairs. It was still dark, but this little one was ready for her daily breakfast of oatmeal and milk in preparation for a fun day at swim lessons and school. As she sat, eating her "oatsss" (as she calls them), I whirled around the kitchen prepping bottles, gathering outfits for school, and ensuring all the swim lesson supplies were set out. It's hard leaving Chris to take care of both kids in the morning (#momguilt) so I try my best to complete as many get-ahead tasks as possible, in hopes his morning goes smoothly. 
This morning schedule description may seem mundan…

MCM - On Call

It's definitely Monday. Otto spit up on my work clothes this morning, I forgot to brush my teeth and I sat down in my car forgetting to clean the layer of sand from the beach yesterday. Whoops. But, it's also MONDAY!!!!! Which means you get a special look behind the proverbial curtain of Mission Control in a series I'm dubbing "Mission Control Monday". We all need a little "boost" (pun intended) at the beginning of the week, so why not get it from the heart of Manned Spaceflight itself - NASA's Mission Control
This week I am highlighting the little known fact that sometimes, as an ADCO Specialist, I am scheduled to be "On Call". It just so happens I am "on-call" this week! Even though we don't have a sweet 1990's pager, the ADCO on-call is a Specialist with the cumbersome responsibility of having their cell phone strapped to them at all times. Yes, even during the night. Yes, even when you have a 3 month old. Yes, just…
01 09 10