Skip to main content

The iDiabetic: A Revolution in Making Life Difficult

Sometimes Diabetes isn’t that bad. I mean, it’s always there, but usually it just kinda flies under the radar without too much frustration.

But then there are times when it seems all-consuming, miserable, and unfair. Enter: this week.

Since I have a new endocrinologist now (because I moved across the country), he decided he wanted me to wear an iPRO for almost a week. This is a little device that is supposed to test your blood sugar every five minutes (although there is no way for you to see the numbers it is reading). As part of the iPRO exercise I was required to test my blood sugar at least 4 times a day (not a big deal), with a separate meter, write down all my carbohydrate intake, the associated insulin, exercise levels, any correction boluses and any extra comments (i.e. Sunday: Easter…an influx of a crapload [that’s a scientific term] of horribly delicious food). Here is a picture of this thing attached to me.

And, honestly, the worst part was the freaking tape they used to protect it…I have been having issues with reactions to adhesives with my pump sites and this was like adhesive overload. So now, after removing it, I have a huge red box on my side…thank you iPRO.

So, after getting the iPRO on and feeling super ugly and robotic I decided to self-inflict more pain by calling the FAA to inquire about my special issuance medical certification. Bad idea. Officially I am not “denied” yet, but they are requesting more information regarding my diabetes-related medical history. Ughhh….

I try my absolute hardest not to use my Diabetes as a crutch, but this deal with the FAA is pulling out every ounce of “positive-Diabetes-thinking” I have. In fact, I had a bit of a Diabetes break down last Friday and called my mom bawling my eyes out. I think I was hoping she could use some of her mom magic to just make the Diabetes disappear. I feel unnecessarily singled out …”diseased” ….unfit to complete ordinary everyday tasks, just because some organization says they need more information about my condition.

I have bruises and skin irritations from the adhesives all over my body, my fingers have lost their sense of feeling because of all the calluses and my self esteem is dwindling with each letter the FAA sends me.

Dear Diabetes,

You Suck.



Love, April

Comments

  1. Good grief! That's the amount of tape you need for that little thing?! No, thank you!

    I hear ya on the "diseased" thing, girly! For the first 3 years I had this "thing" I didn't tell anyone unless I absolutely had to. I was actually ashamed and it's not like it was my fault! I'm finally getting to the point that I want to make people aware of it and actually talk about it. Because it's such a huge part of my day, and hardly anyone around me knows it.

    Anywho, just wanted to let you know that one thing I have learned is that it's OK to be mad, sad, angry, whatever at diabetes. I think sometimes we're expected to hold our heads up high like diabetes martyrs or something. Hellllllllll, no! This disease freakin' sucks the big one! *whew* Now I'm gonna go test, with my middle finger. F-U, diabetes!!!

    ReplyDelete
  2. ok ok... put the razor down, step off the ledge, and untie the knot. I know diabetes can be rough, ok... I 'understand' diabetes can be rough, I guess I don't 'know'. But that's what your family, friends, and I are here for. You have a huge support net to catch you if you're ever afraid your going to fall. I know when I've been in a tough spot before you've been there for me. On multiple occasions, and I'm sure I'm not the only one. No matter what happens with this new d-bag doc, the FAA, or what ever we'll always be here for you. possibly with chocolate eggs and a starbucks white mocha.

    with love,
    >Chris

    ReplyDelete
  3. ok... so i just re-read that.. ignore the grammar and focus on the meaning please...

    >Chris

    ReplyDelete

Post a Comment

Who has two thumbs and loves comments? Nerdy April!!! Type one out and hit publish!

Popular posts from this blog

On 20 years with Type 1 Diabetes

I think it's finally time to hit 'publish' on this post, considering it's been sitting here for, oh you know, like 2 weeks now ;-) Sometimes I "April" about things too much (this is Chris's term), and with my dad here for Christmas I realized that it's definitely a trait passed down, haha, love you dad!


To be honest, I never thought the day would come when I would say, "I've had Type 1 Diabetes for 20 years."

20 years ago a cure was 'just on the horizon' and as an 11 year old kid I took that phrase to heart - I had to. My continued existence was based solely on whatever the endocrinologist said - pancreas, insulin, autoimmune, blood sugar, islet cells, shots. I didn't know what I didn't know at that point. I had never heard of an insulin pump or glucose meter. Ketones and hyperglycemia were just big, meaningless words. Carb ratios and counting might as well have been formulas for travelling at light speed. I wasn't ov…

Critical Space Item: Handle With Extreme Care

Someday I want to open a box. The box will be neatly wrapped up with an excessive amount of packaging. Its contents will have been years in the making, and even though it won't weigh much, this small box will represent a huge step forward.


As most flight hardware begins, the space-rated closed-loop insulin delivery and monitoring device inside the box will be sterile and stark. But as the batteries whir to life and insulin is placed within, it will become an extra appendage, an external pancreas, for this Type 1 astro-hopeful. Bluetooth connections will be made and doctors, hungry for telemetry from my bionic body, will be at the ready. We will rely on each other - he on I for his very existence, and I on him for my continued existence. Together we will make up one whole, completely functioning, Type 1 Diabetic astronaut.

Admittedly, this dream feels further and further from reality. I have lived with this disease just under 20 years now, and the cure has always been "just 5 …

MCM - Certified Mom

This morning I woke up early, the baby monitor was chirping just a few minutes before my alarm was set to go off. Chris graciously rolled out of bed and set out to re-insert Otto's paci. Meanwhile, I pressed my clothes, curled my hair and brewed some coffee - my standard pre-console routine. After a quick breakfast Zara peeped her head over the railing and I heard a gentle "mama" echo down the stairs. It was still dark, but this little one was ready for her daily breakfast of oatmeal and milk in preparation for a fun day at swim lessons and school. As she sat, eating her "oatsss" (as she calls them), I whirled around the kitchen prepping bottles, gathering outfits for school, and ensuring all the swim lesson supplies were set out. It's hard leaving Chris to take care of both kids in the morning (#momguilt) so I try my best to complete as many get-ahead tasks as possible, in hopes his morning goes smoothly. 
This morning schedule description may seem mundan…
01 09 10